Met ingang van woensdag 17 april 2024 is MPN-Verbindt overgegaan in MPN World.
U kunt het aanvraagformulier voor MPN World vinden op : https://mpnworld.org/
Met ingang van woensdag 17 april 2024 is MPN-Verbindt overgegaan in MPN World.
U kunt het aanvraagformulier voor MPN World vinden op : https://mpnworld.org/
MPN-verbindt staat open voor iedereen die lijdt aan een MPN-ziekte (Essentiële Trombocytose, Polycythaemia Vera of Myelofibrose), of die zich hier om wat voor reden dan ook bij betrokken voelt. De activiteiten en berichten hebben betrekking op het leven met deze ziekte. Aan mensen die zich voor de eerste keer aanmelden, wordt gevraagd om zichzelf voor te stellen en hun eigen situatie te beschrijven. Aan patiënten met een MPN wordt gevraagd om standaard onder elk bericht aan te geven hoe oud men is, aan welke ziekte men lijdt en hoe lang, en de medicatie te vermelden (b.v. 1969, ET sinds 2005, Hydrea 1000 mg/dag, Ascal).
Door het bezoeken van “MPN-verbindt” (hierna genoemd “wij”, “ons”, “onze”, “https://www.mpn-verbindt.nl”), ga je automatisch akkoord met de daar gestelde voorwaarden. Als je niet akkoord gaat met deze voorwaarden, bezoek of gebruik “MPN-verbindt” dan niet langer. We hebben het recht om de voorwaarden op ieder moment te wijzigen en zullen ons best doen om je hiervan tijdig op de hoogte te brengen, het is echter aan te raden om zelf de voorwaarden regelmatig te controleren op wijzigingen. Kun je niet akkoord gaan met deze wijzigingen, maak dan niet langer gebruik van “MPN-verbindt”. Blijf je gebruik maken van “MPN-verbindt”, dan ga je automatisch akkoord met de wijzigingen en/of toevoegingen.
MPN-verbindt draait op het platform van Hivebrite.
Je gaat akkoord met het volgende: geen kwetsende, obscene, vulgaire, lasterlijke, haatdragende, dreigende, seksueel georiënteerde of anderszins verwerpelijke berichten te plaatsen, die de van toepassing zijnde regels en/of wetten schenden die gelden voor Nederland of de internationale wetgeving. Het plaatsen van dergelijke berichten kan ertoe leiden dat je met onmiddellijke ingang en permanent wordt uitgesloten van MPN-verbindt. Tevens kan je eigen serviceprovider hierover worden ingelicht. De IP-adressen van alle berichten worden opgeslagen om deze voorwaarden te kunnen waarborgen. Je gaat er mee akkoord dat “MPN-verbindt” het recht heeft om ieder onderwerp te verwijderen, te wijzigen, te sluiten of te verplaatsen wanneer zij dit nodig achten. Als gebruiker ga je ermee akkoord dat de informatie die je bij ons invoert, wordt opgeslagen in een database. Hoewel deze informatie niet aan een derde partij zal worden verstrekt zonder je toestemming, kan "de MPN-stichting” noch "de mensen van MPN-verbindt" verantwoordelijk worden gehouden voor activiteiten van hackers die ertoe kunnen leiden dat de gegevens vrijkomen.
End user license agreement:
End User License Agreement
This End User License Agreement (“Agreement”) is between you and MPN Stichting and governs use of this app made available through the Apple App Store. By installing the MPN Stichting App, you agree to be bound by this Agreement and understand that there is no tolerance for objectionable content. If you do not agree with the terms and conditions of this Agreement, you are not entitled to use the MPN Stichting App.
In order to ensure MPN Stichting provides the best experience possible for everyone, we strongly enforce a no tolerance policy for objectionable content. If you see inappropriate content, please use the “Report as offensive” feature found under each post.
1. Parties
This Agreement is between you and MPN Stichting only, and not Apple, Inc. (“Apple”). Notwithstanding the foregoing, you acknowledge that Apple and its subsidiaries are third party beneficiaries of this Agreement and Apple has the right to enforce this Agreement against you. MPN Stichting, not Apple, is solely responsible for the MPN Stichting App and its content.
2. Privacy
MPN Stichting may collect and use information about your usage of the MPN Stichting App, including certain types of information from and about your device. MPN Stichting may use this information, as long as it is in a form that does not personally identify you, to measure the use and performance of the MPN Stichting App.
3. Limited License
MPN Stichting grants you a limited, non-exclusive, non-transferable, revocable license to use the MPN Stichting App for your personal, non-commercial purposes. You may only use the MPN Stichting App on Apple devices that you own or control and as permitted by the App Store Terms of Service.
4. Age Restrictions
By using the MPN Stichting App, you represent and warrant that (a) you are 17 years of age or older and you agree to be bound by this Agreement; (b) if you are under 17 years of age, you have obtained verifiable consent from a parent or legal guardian; and (c) your use of the MPN Stichting App does not violate any applicable law or regulation. Your access to the MPN Stichting App may be terminated without warning if MPN Stichting believes, in its sole discretion, that you are under the age of 17 years and have not obtained verifiable consent from a parent or legal guardian. If you are a parent or legal guardian and you provide your consent to your child’s use of the MPN Stichting App, you agree to be bound by this Agreement in respect to your child’s use of the MPN Stichting App.
5. Objectionable Content Policy
Content may not be submitted to MPN Stichting, who will moderate all content and ultimately decide whether or not to post a submission to the extent such content includes, is in conjunction with, or alongside any, Objectionable Content. Objectionable Content includes, but is not limited to: (i) sexually explicit materials; (ii) obscene, defamatory, libelous, slanderous, violent and/or unlawful content or profanity; (iii) content that infringes upon the rights of any third party, including copyright, trademark, privacy, publicity or other personal or proprietary right, or that is deceptive or fraudulent; (iv) content that promotes the use or sale of illegal or regulated substances, tobacco products, ammunition and/or firearms; and (v) gambling, including without limitation, any online casino, sports books, bingo or poker.
6. Warranty
MPN Stichting disclaims all warranties about the MPN Stichting App to the fullest extent permitted by law. To the extent any warranty exists under law that cannot be disclaimed, MPN Stichting, not Apple, shall be solely responsible for such warranty.
7. Maintenance and Support
MPN Stichting does provide minimal maintenance or support for it but not to the extent that any maintenance or support is required by applicable law, MPN Stichting, not Apple, shall be obligated to furnish any such maintenance or support.
8. Product Claims
MPN Stichting, not Apple, is responsible for addressing any claims by you relating to the MPN Stichting App or use of it, including, but not limited to: (i) any product liability claim; (ii) any claim that the MPN Stichting App fails to conform to any applicable legal or regulatory requirement; and (iii) any claim arising under consumer protection or similar legislation. Nothing in this Agreement shall be deemed an admission that you may have such claims.
9. Third Party Intellectual Property Claims
MPN Stichting shall not be obligated to indemnify or defend you with respect to any third party claim arising out or relating to the MPN Stichting App. To the extent MPN Stichting is required to provide indemnification by applicable law, MPN Stichting, not Apple, shall be solely responsible for the investigation, defense, settlement and discharge of any claim that the MPN Stichting App or your use of it infringes any third party intellectual property right.
MPN Stichting App End User License Agreement
This End User License Agreement (“Agreement”) is between you and MPN STICHTING and governs use of this app made available through the Apple App Store. By installing the MPN STICHTING App, you agree to be bound by this Agreement and understand that there is no tolerance for objectionable content. If you do not agree with the terms and conditions of this Agreement, you are not entitled to use the MPN STICHTING App.
In order to ensure MPN STICHTING provides the best experience possible for everyone, we strongly enforce a no tolerance policy for objectionable content. If you see inappropriate content, please use the “Report as offensive” feature found under each post.
1. Parties
This Agreement is between you and MPN STICHTING only, and not Apple, Inc. (“Apple”). Notwithstanding the foregoing, you acknowledge that Apple and its subsidiaries are third party beneficiaries of this Agreement and Apple has the right to enforce this Agreement against you. MPN STICHTING, not Apple, is solely responsible for the MPN STICHTING App and its content.
2. Privacy
MPN STICHTING may collect and use information about your usage of the MPN STICHTING App, including certain types of information from and about your device. MPN STICHTING may use this information, as long as it is in a form that does not personally identify you, to measure the use and performance of the MPN STICHTING App.
3. Limited License
MPN STICHTING grants you a limited, non-exclusive, non-transferable, revocable license to use theMPN STICHTING App for your personal, non-commercial purposes. You may only use the MPN STICHTING App on Apple devices that you own or control and as permitted by the App Store Terms of Service.
4. Age Restrictions
By using the MPN STICHTING App, you represent and warrant that (a) you are 17 years of age or older and you agree to be bound by this Agreement; (b) if you are under 17 years of age, you have obtained verifiable consent from a parent or legal guardian; and (c) your use of the MPN STICHTING App does not violate any applicable law or regulation. Your access to the MPN STICHTING App may be terminated without warning if MPN STICHTING believes, in its sole discretion, that you are under the age of 17 years and have not obtained verifiable consent from a parent or legal guardian. If you are a parent or legal guardian and you provide your consent to your child’s use of the MPN STICHTING App, you agree to be bound by this Agreement in respect to your child’s use of the MPN STICHTING App.
5. Objectionable Content Policy
Content may not be submitted to MPN STICHTING, who will moderate all content and ultimately decide whether or not to post a submission to the extent such content includes, is in conjunction with, or alongside any, Objectionable Content. Objectionable Content includes, but is not limited to: (i) sexually explicit materials; (ii) obscene, defamatory, libelous, slanderous, violent and/or unlawful content or profanity; (iii) content that infringes upon the rights of any third party, including copyright, trademark, privacy, publicity or other personal or proprietary right, or that is deceptive or fraudulent; (iv) content that promotes the use or sale of illegal or regulated substances, tobacco products, ammunition and/or firearms; and (v) gambling, including without limitation, any online casino, sports books, bingo or poker.
6. Warranty
MPN STICHTING disclaims all warranties about the MPN STICHTING App to the fullest extent permitted by law. To the extent any warranty exists under law that cannot be disclaimed, MPN STICHTING, not Apple, shall be solely responsible for such warranty.
7. Maintenance and Support
MPN STICHTING does provide minimal maintenance or support for it but not to the extent that any maintenance or support is required by applicable law, MPN STICHTING, not Apple, shall be obligated to furnish any such maintenance or support.
8. Product Claims
MPN STICHTING, not Apple, is responsible for addressing any claims by you relating to the MPN STICHTING App or use of it, including, but not limited to: (i) any product liability claim; (ii) any claim that the MPN STICHTING App fails to conform to any applicable legal or regulatory requirement; and (iii) any claim arising under consumer protection or similar legislation. Nothing in this Agreement shall be deemed an admission that you may have such claims.
9. Third Party Intellectual Property Claims
MPN STICHTING shall not be obligated to indemnify or defend you with respect to any third party claim arising out or relating to the MPN STICHTING App. To the extent MPN STICHTING is required to provide indemnification by applicable law, MPN STICHTING, not Apple, shall be solely responsible for the investigation, defense, settlement and discharge of any claim that the MPN STICHTING App or your use of it infringes any third party intellectual property right.